My nephew's genotype result came out today, he is an SS patient. Since he was born, he has this yellowish eyes and slim body.


Please family how best can we manage him. He's always sick.

He is seven years old.

Please I need help on the type of food, supplements, herbs etc


Thank you

How has he been surviving all these years?

Nothing special we just treat him for malaria and typhoid when he is sick. But he just had his first crisis. He is not recovering reason for the full blood count and checking his blood group and genotype.

Joyfulgal:
My nephew genotype result came out today, he is an SS patient. Since he was born, he has this yellowish eyes and slim body.


Please family how best can we manage him. He's always sick.

He is seven years old.

Please I need help on the type of food, supplements, herbs etc


Thank you

First and most important thing is to register him in a reputable sickle cell clinic close to you, where he will going for regular appointments, then you'll be given a list of medications, that he will be on for life which will reduce the numbers of crisis and complications that may arise from sickle cell disease later on in life. You will also be throughly educated about the disease and things to avoid and danger signs to look out for.
Plasse register him in one as soon as possible, and attend the clinic as often as the doctor asks you to.
May God grant you strength, having a child with sickle cell disease is not easy at all, but with the right care and treatment, many of them will do well and live long.

Lorazepam:

First and most important thing is to register him in a reputable sickle cell clinic close to you, where he will going for regular appointments, then you'll be given a list of medications, that he will be on for life which will reduce the numbers of crisis and complications that may arise from sickle cell disease later on in life. You will also be throughly educated about the disease and things to avoid and danger signs to look out for.
Plasse register him in one as soon as possible, and attend the clinic as often as the doctor asks you to.
May God grant you strength, having a child with sickle cell disease is not easy at all, but with the right care and treatment, many of them will do well and live long.

Thank you. He is my nephew and they reside in Delta State(warri).

Did not know there are special hospitals for sickle cell disease.

Will research more on such hospitals. I have little knowledge regarding this.


Thank you

Joyfulgal:



Thank you. He is my nephew and they reside in Delta State(warri).

Did not know there are special hospitals for sickle cell disease.

Will research more on such hospitals. I have little knowledge regarding this.


Thank you

Any Govt teaching hospital/FMC should be okay, they usually have special clinic days for sickle cell patients.

Best advice I will give you as a doctor, is that he should be taken to a federal medical centre or a teaching hospital, and demand to see a pediatric hematologist..(pediatrician specialized in sickle cell management).

Joyfulgal:
My nephew's genotype result came out today, he is an SS patient. Since he was born, he has this yellowish eyes and slim body.


Please family how best can we manage him. He's always sick.

He is seven years old.

Please I need help on the type of food, supplements, herbs etc


Thank you

Having a sickled cell child is not a death sentence, with proper management, your child will live long in Good health. Don't expose the child to any form of cold. Also protect the child from mosquito bite and prevent the child from going through stress. Eat good food
and vegetables and fruits and avoid junks food. Of course don't give any multivitamin that contains iron they can't tolerate it. With God in your side. The child will live healthy.
If you can afford it Try stc 30 for the child call/ chat and let us talk about it. People on stc30 hardly have crisis. It is well with you and your nephew

Lorazepam:


Any Govt teaching hospital/FMC should be okay, they usually have special clinic days for sickle cell patients.

Thank you Sir

Titay:
Having a sickled cell child is not a death sentence, with proper management, your child will live long in Good health. Don't expose the child to any form of cold. Also protect the child from mosquito bite and prevent the child from going through stress. Eat good food
and vegetables and fruits and avoid junks food. Of course don't give any multivitamin that contains iron they can't tolerate it. With God in your side. The child will live healthy.
If you can afford it Try stc 30 for the child call/ chat and let us talk about it. People on stc30 hardly have crisis. It is well with you and your nephew

Thank you Sir. I guess the drug is expensive. A burden too heavily to carry now. Will focus on the food and vegetables.

Someone suggested a government hospital. I will pass all information to her.

drskyfly007:
Best advice I will give you as a doctor, is that he should be taken to a federal medical centre or a teaching hospital, and demand to see a pediatric hematologist..(pediatrician specialized in sickle cell management).

Thank you Sir